The purpose of this dispatch (updated April, 2018) is to provide a focal point of support and information for family members and persons living in Ireland who have Hereditary Multiple Exostoses (HME) in order to encourage them to share their experiences so that people in general will have a clearer understanding of this rare condition and how challenging affected lives can be. I fully appreciate that some of us are rather difficult to get to open up on so personal a subject. I am not one of those, and I expect after reading the following post you will be inspired to add your own personal experiences, questions and feedback in the “Comments” https://nialljoreilly.com/2012/04/28/hereditary-multiple-exostoses-ireland/#comments section located at the bottom of this post, which is divided into the following sections:
- HME and Me
- What is Hereditary Multiple Exostoses?
- Bony lump?
- What complications are caused by HME?
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